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ABA BCBA progress thankful therapy

The Perfect Gift

This picture makes my heart happy.

This is Colin and Teri, his BCaBA.  Rumor has it that after they cuddled cheek to cheek and looked out the window, he gave her a kiss on the cheek.

This is part of his school day, and I’m so thankful for all of these people.  We are so blessed to have this amazing team of people as part of our tribe.  He loves his school too – he grabbed his back pack and was ready to go to school before I even said it was time to go today.

I’ve been looking back on 2018.  He’s come such a long way.

He said his first word.
He started using his AAC device.
He is following directions.
He is matching pictures.
He is receptively identifying pictures.
He is labeling pictures with his device.
He is verbally imitating words.
He is sleeping through the night, initiating more, even doing some chores.

Every Christmas season, I try really hard to find the perfect gifts for my kids.  To find those things that will make them smile and bring joy.

This picture represents everything that I wanted for Colin this year.

Last Christmas, I just wanted to hear his sweet voice.  I got to hear that first word in January.

I wanted him to communicate with me.  He started using his device in March.

I wanted to get him the help that needed in order to give him his best chance.  I wanted to surround him with people who believed in him just as much as I do.  I am forever thankful for all that Teri (and the rest of his amazing team) has done for him and our family.

He might not know it yet, but they have given him the best gift ever: teaching him how to learn, accepting him as he is, acknowledging all that he has the potential to be, and loving him for the perfect little boy that he is.

Categories
ABA autism BCBA progress therapy

Thank You, ABA Team

To Colin’s ABA team:

First of all, Happy Thanksgiving!  I hope you all eat your weight in turkey and pie today – you deserve it. Have that second or third piece of pie, you know you’ve earned it!

I wanted to take a little time today to thank you all.  You’ve only been a part of our lives for about nine months, but you’ve made such an impact on our little family in that short period of time.

First, I have you all to thank for Colin’s amazing progress.  You are in the trenches with us every single day, working tirelessly to help him succeed.  You power through the rough times and celebrate with him in the good times.

I want you to know how much of an impact you’re making, because sometimes we forget in the day to day how far we’ve come.

You have taken a little boy who didn’t sit at the table, and you have taught him to sit for long stretches of time.  (Have you ever tried to bathe a cat?  Getting Colin to sit in a chair was a very similar experience about nine months ago.)

You have taken a little boy who only did things that were his idea, and you taught him complete adult-directed tasks.

You have taken a little boy who screamed out of frustration and you have given him a voice.

You have taken a little boy who thought “WAIT” was a bad four letter word, and you have taught him to patiently wait and ENJOY it like it’s a game.

You have taken a little boy who was so unsure of himself, and you’ve given him self-confidence.

You have taken a little boy who was just stuck, and you have taught him how to learn.

You have opened up a whole new world of opportunity to him and to our family.

Just as important as all of those things listed above, you have taken a little boy who could easily be overlooked, or left behind, or ignored, and you have accepted and loved him for who he is.  You see him, truly see him.  You see his sweet personality (and ornery streak), and you see his potential.

Today, I hope that you are proud of the jobs that you do, because they are ever so important to family’s like ours.  You have changed the trajectory of my son’s life – and that’s monumental.  You truly are life-changing ninjas – wear that badge with honor!  Your jobs are so important, and we are forever thankful for you all.

Categories
ABA autism therapy

I Love ABA

I love ABA.

There, I said it.

Really, if ABA were a person, I’d be talking Curtis into the whole “sister-wife” thing…that maybe just got a little weird, but really.  I’d marry ABA.

In just six months, ABA has changed Colin’s life.  It has taught him how to learn.  When you teach a kid how to learn, you open up the world to them.

I am so proud of his new skills:  sitting and working, waiting, matching, sorting, imitating, attending to task, using his AAC device, gaining verbal words….the list goes on and on.  Seeing how much progress he has made in six months (with just two hours of therapy a day) is unbelievable.

But do you know what else ABA has given Colin?

Confidence.

I watched him today while we attended a birthday party for some friends.  Their house was full of people that he (mostly) didn’t know.  He sat at the table as we sang “Happy Birthday.”  He watched them open their gifts.  He played with their new toys.  He interacted with other adults.  He was happy.  We stayed for two hours – this would never have been possible before ABA.

With ABA therapy, he has learned that he can try new things.  He used to enter a new situation and immediately try to flee.  Meltdowns happened almost immediately.  When he didn’t know what was expected of him, or didn’t know what to do, he wanted out of there.  When he did come around to trying something new or hard, he wanted to be alone.  When he first became interested in puzzles, he only tried them when he was alone.  If I approached him, he immediately stopped.  It was almost like he was uncomfortable in his own skin and was afraid to even try.

Today, I watched him.  He sat.  He observed.  He saw what everyone else was doing, and he joined in and did it too.  He was comfortable and happy.

He wanted to play with their new NERF gun.  He took it to another adult.  He tried to load the dart, but couldn’t figure it out.  The adult helped  him do it the first time.  The second time, Colin was able to do it himself.  He had the confidence in himself to try something new.  He never did that before ABA.

As my Mawmaw would say, you can see the wheels turning.  He is watching and learning.  This is such an important skill, and we have his amazing ABA therapists to thank for that.

This time last year, I worried about him so much.  Would he ever talk?  Would he ever follow directions? Would he ever progress beyond where he was?   Could he learn new things?

Now, I still worry about him.  I wonder if he will ever have functional speech.  But now, I know that he will continue to make progress.  He is learning new things everyday.  He has developed a self-confidence that gives him the ability to try new things.  ABA therapy isn’t just teaching him how to “do this” or “do that,” it is teaching him how to learn and giving him confidence in his ability to learn along the way.  Seeing how confident he has become in learning makes my heart happy.

(And, Hey, ABA – if you’re out there and reading this, the sister-wife offer still stands.  Full disclosure here: you’re on laundry duty.  It’s my least favorite chore.  I hope that’s not a deal breaker.)

Categories
therapy therapy tips

Therapy Tip Series

Several people have asked me to write a post to share therapy tips.  When I sat down to write out some helpful hints, my mind went crazy!  There is so much I’d like to say! Where does one even start?! 

The first thing I want to say is this:  I am not your therapist.  Well, I might be, or have been, or will be, but I’m probably not.  Therefore, I can’t treat your child through this blog.  I highly recommend that you find a local speech language pathologist to work with your child.  He or she will complete an evaluation and come up with a treatment plan that best suits your child’s (and family’s) needs.  Every child is different, regardless of diagnosis.  I know we are all probably autism parents here, but no two kids on the spectrum are alike.  That means that each child needs a treatment plan that is tailored to their needs.  So, again, find an SLP in your area. 

I’d like to start a series where I talk about therapy ideas, give book recommendations, and all that fun stuff.  You’ll have to stay tuned to the blog for more on that endeavor!
For now, I do have some things I’d like to share, mom to mom. 
You are mom first.
This is something I struggled with initially.  I have always known that Colin was different, so I have always worked with him.  I thought, being a therapist, I had the knowledge and tools to help him.  So that’s what I did.  Well, I tried, anyway.  The therapist in me wanted to seize the day and take on every moment as a language building opportunity.  I was able to do that for a time, but it was exhausting and wore me down. 
Having a child with special needs is hard.  You see them struggle, and all you want to do is help.  You see that struggle and that creates a sense of urgency in yourself.  You want help, like, yesterday. 

Your life has become an endless schedule of therapies:  speech, OT, PT, music, ABA, Floortime, social group.  You take it upon yourself, life the amazing momma that you are, to carryover those therapies into your daily routines. You feel like you have become your child’s therapist!  But where does “Therapist” end and “Mom” begin? 

2010 Therapist Deidrawould have given you completely different advice.  Here’s the thing though:  2010 Therapist Deidra did not yet have a son on the spectrum.

The new (and hopefully) improved 2018 Autism Mom Deidra will tell you this:  life is happening.  Survival is the most important.  Oh, so you didn’t sleep much last night because your child decided to wake up for the day at 3AM?  Just make it through the day, bro. 

First and foremost, you are Mom.  Love on your babies.  If you have other children, don’t forget about them.  “Therapy stuff” can rule your life if you let it, but your other children will notice if that happens.  You are their mom too.  “Mom” is, and always will be, your most important title. 
Be in the Moment.
Being in the moment is hard for us autism moms.  We don’t get to just chill and enjoy the moment.  We are always calculating, thinking two steps ahead of our kids. 

What’s he going to do next?  
Run?
Scream?
Throw that toy at his brother’s head?
Steal food off the stranger’s plate at the restaurant?
Oh, no!  He is eyeing that nasty gross something on the ground, is it going in his mouth?!

You know exactly what I’m talking, right?!  We are always in “preparation to strike” mode.  Also worrying about what is going to happen next and trying to figure out when the next meltdown is coming.  I encourage you to just enjoy the good moments when you get them.  Be in this moment and enjoy your child. 

I find that we are most successful when we just play.  Remember, play is a child’s work.  Play with them.  Enjoy them.  Have your moment.   I think you’ll be amazed what you can accomplish with some good ol’ family time. 
Work at your child’s level.
We all mean well and want to help our children….but where do we even start?  This is where you need to find a professional in your area to help you choose the right goals.  You need to know where your child is functioning before you know what to work on.
So many parents want to start working on colors, shapes, and letters.  Why is that?  Well, it’s probably because almost all children’s toys focus on these concepts!   If your child is nonverbal or has very few words, these are just not appropriate. 

Ask yourself this question:  Does pointing to/naming “triangle” really help my child communicate with me every day?
 Probaby not.  So that would not be a functional thing to work on right now.  With our kids on the spectrum, we often have to back waaay up and get those foundational communication skills.  That is what I mean by “work at their level.”  If we try to jump too far ahead, both you and your kid will end up banging your heads against the wall in frustration. 
I know these things might be common sense, but I think we all need reminded from time to time.  I plan to do give some book recommendations soon, so stay tuned!  Best of luck to you as you continue on your autism journey!  We are all in this together, Mommas!

I am a pediatric speech language pathologist.  Please find a therapist near you for tailored-to-your-child communication assistance!